My son Brett is 35 and has choroideremia (CHM). It’s hard to explain how difficult that was for our family to hear that diagnosis when he was 5 or 6. As a parent, I just tried to keep things as normal as I could for Brett. With Brett being part of the first Gene Therapy trials, we have had a chance to spend some real quality time together and we have met so many amazing people — people that are part of the trials, people with CHM and their families, and Team CHMers.
I am not a very outgoing person, but being part of this amazing CHM family has been a bit of a blessing, and helped me be a little more comfortable with people. That being said, it goes without saying that I wish Brett’s eyes were normal. With all the good news in treatments and research, and brave men like Brett, we will end this disease.
When Brett began running and did a fundraiser with Team CHM by running a half marathon in Philadelphia, I thought maybe I could do something like that too. Sports has always been a big part of my life, and being part of something like Team CHM and raising money for this unfortunate disease has been inspiring, fun, and important for many reasons. Getting close to retirement, I wanted to try to get in better shape. It seemed like a good fit and something I could do to help just a little. Brett has been a huge for inspiration for me. We must stop this disease for our young CHMers.
Being able to finish and cross the finish line will feel incredible. It will be an accomplishment I will be extremely proud of. I never thought I would be able to run again due to age and knee issues. To be able to run 13.1 miles seemed impossible a year ago, so to finish may just bring tears to my eyes. To be able to run this with my son and other Team CHMers, and to be part of Team CHM is truly an honor.
Cheer on Dennis and Brett and support the Sims as they race for a reason, to find a cure for CHM: https://donate.curechm.org/fundraise?fcid=873801