CHM Ice Bucket Challenge – Freeze Blindness!

The CHM Ice Bucket Challenge is off and running with videos popping up and donations coming in!  Join us as we “Freeze Blindness” caused by CHM – IMG_4385 donations for the challenge can be made at the CHM Ice Bucket Challenge donation page – which is or just as a General Donation right off of

When doing the CHM Ice Bucket Challenge be sure to wear sunglasses – and share the link to your video and the donation page with all your friends via Facebook, Twitter, and on YouTube! IMG_4367 If you have been challenged via the ALS challenge then Double Down and give to both charities and challenge your friends to do the same!  Add #curechm and #icebucketchallenge to your videos so they will be easy to find online!  Have fun!

Alan takes on first 10k

On Sunday August 24, Alan Trowhill continued his string of races for Team CHM – this time upping the distance and finishing his first ever 10k event (6.2 mile run).  The South Lakes 10k in Reston, VA helped Alan bring his total fundraising up over $4700 – within $300 of his $5000 goal.  On top of that, Alan cruised through the event in 69:26 a great time for his first 10k.  Next up, in just over one month Alan will face his first 1/2 Marathon – 13.1 miles of running . . . given his recent race results it looks like he is setting himself up for success!  Visit Alan’s fundraising page by Clicking Here and help him break through his $5000 goal!  

Rob raises $725 at 5k event

On August 10th Rob Volker took on the “Know You Can” 5k sponsored by the Cincinnati Association for the Blind and Visually Impaired.

Rob Volker along with Parent's Betty & Jim, and sister Angie Clemens
Rob Volker along with Parent’s Betty & Jim, and sister Angie Clemens

Rob had set a goal for himself to raise $500 and he smashed it – raising $725 that will go toward funding research that will cure CHM. It was a great event, and Rob and his family are already talking about possibly taking on the 5k again next year!

Mike to swim 17.5 miles for CHM this weekend!

Mike Miller, who recently completed a 36 mile swim down the Red River in North Dakota, is now taking on a 17.5 mile open water swim from Manhattan to Sandy Hook, NJ – all to raise awareness and funds to cure blindness.  The Ederle swim, put on by NYC Swim, is an annual event for World Class marathon swimmers and it is named after Gertrude Ederle an Olympic Champion and World Record holder who in 1926 became the first woman to swim across the English Channel.

A fact often lost on non-channel swimmers is that in order to do an “official” channel swim a swimmer may use “No Artifical Aids” that includes any sort of thermal or bouyancy aids – thus meaning that a channel swimmer can not wear a wetsuit, no matter how cold the water is.  Mike has successfully swam across the English Channel among other marathon swims, and often spends over eight hours in water that is in the 50’s – 60’s, making the massive length of these swims that much more difficult.  Take a look at this video of Mike from the Ederle Swim in 2012 to see just how cold you get when you get out of the water after a long cold swim with no wetsuit. If you appreciate hard work, and dedication, and want a cure for Choroideremia please click here and make a donation to Mike’s Marathon Swim campaign. Even if you don’t know Mike personally, you know how important this cause is – and so does he. That is why he is swimming for us.

8k trail run for sight

Taking on his third race in less than a month, Alan Trowhill upped the distance and increased the difficulty by entering his first ever 8k Alan 8ktrail run.  The route took racers through single track trails in the woods, across fields, and along gravel roads all located at the Third Battle of Winchester in Virginia.  With 80 racers coming out for the event, which itself was a fundraising race for Multiple Sclerosis, it was a fun and challenging day.  Alan clocked a time of 1 hour & 8 seconds, a good time for an off road race over challenging terrain!

Alan continues on his quest to raise money to End Blindness caused by Choroideremia, and is already looking forward to his first 10k event, scheduled for August 24th.  Click Here to Support Alan as he continues to push himself through longer distances and more challenging events, all while raising awareness about CHM and funds for a cure.